It’s been an odd couple of weeks. Much has happened. We finally got the “official” diagnosis for Misha. He has officially 1p36.3 deletion disorder. Now that we have our diagnosis, what now? Well, he is going to need an MRI, ECG, and will need to see an orthopedist. We will continue with Kids On The Move. We’ll work with him at home to try to give him a good life.
Speaking of Misha, my wife was pleasantly surprised when she got home how much he has progressed in his walking. He can’t independently stand in the middle of room, but he has been cruising, then releasing and toddling across the room or down the hall. He is stopping, restarting, changing directions and his free standing is improving. We are still working on his signing, trying to encourage him to say new words, and so on. The battle continues.
My wife finally got back from Russia. Her flight from JFK to SLC meandered around the tarmac for 7 hours before they canceled her flight, stranding her in NYC. The earliest flight out was 3 days later, on Saturday. Luckily, there were 3 other women in the same position who were able to share hotel costs with her.
We found out a couple of days ago that her father passed away. I think God planned it very well. He was about to be transferred from the hospice he was in to another place and that would have been rough on him and my mother-in-law. My wife was finally home (being there for the funeral would have been rough on her) and had been able to say her goodbyes. So he slipped into the eternities at the best possible moment. My mother-in-law, of course, has to face this but not alone. Now we can move toward getting her over here. Yay!
Finally, I got a new job. It was a long and difficult decision. I like the place I work, what I do, and the people I work with, but it wasn’t working for me financially, so I had to start looking. Especially with Misha, it was important to do this. Unfortunately, it is not the best time for the company for me to move on and I would, in all reality, prefer to stay. And I lost a trip to Amsterdam in the process. Se la vie!
So, when one door closes, an other opens.
