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Archive for the ‘Life or something like it’ Category

Things are going well. I like my new job. It works well in so many ways. It’s close, in fact I walk home the 2.5 miles a few times a week (when nothing requires me to be home early). There is no food stockpile, so I expect to lose weight. [...]

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My kids seem to be staging a revolt. The are throwing off the shackles of complacency and bursting forth to new horizons. Misha is feeding himself! We have been working with him off and on, trying to get him to feed himself. Finally yesterday, Ira gave him some rice pudding and [...]

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It’s been an odd couple of weeks.  Much has happened.  We finally got the “official” diagnosis for Misha.  He has officially 1p36.3 deletion disorder.  Now that we have our diagnosis, what now?  Well, he is going to need an MRI, ECG, and will need to see an orthopedist.  We will continue with Kids On The [...]

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Not unlike most people, I have a high disdain for bureaucracy.  Having lived in Russia and Ukraine, I got my fair share of the post-Soviet Soviet-style bureaucracy to last me a life-time.  It’s good to day that in the commercial sector, Russia is catching up.  In the gov’t sector, it’s as bad as always.  The [...]

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My wife left this week (rather unexpectedly) to visit her dying father in Moscow.  She had been waiting on her passport from the Russian consulate in San Francisco, which is even worse than waiting for one of ours.  In an unexpected burst of efficiency, they returned her passport to her in less than the minimum [...]

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Things have happened since my last entry. Things usually do. So we’ll play catch up.
We are still waiting for the official results of Misha’s FISH test to set the severity of his deletion. We are assuming that it will be not terribly large, considering his consistent progress. He is doing very [...]

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Late last year, my wife’s father, the evil incarnate, slipped or tripped and fell. He fractured part of his hip, but in a place that should have healed by itself. Therefore, he was confined to the apartment and was doing okay hobbling back and forth from his room to the bathroom and kitchen.
I [...]

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