Things are going well. I like my new job. It works well in so many ways. It’s close, in fact I walk home the 2.5 miles a few times a week (when nothing requires me to be home early). There is no food stockpile, so I expect to lose weight. [...]
Archive for the ‘Misha’ Category
Life update
Posted in Life or something like it, Misha on August 3, 2007 | Leave a Comment »
One door closes, another opens
Posted in Life or something like it, Misha on July 5, 2007 | Leave a Comment »
It’s been an odd couple of weeks. Much has happened. We finally got the “official” diagnosis for Misha. He has officially 1p36.3 deletion disorder. Now that we have our diagnosis, what now? Well, he is going to need an MRI, ECG, and will need to see an orthopedist. We will continue with Kids On The [...]
While the cat’s away…
Posted in Life or something like it, Misha on June 3, 2007 | Leave a Comment »
My wife left this week (rather unexpectedly) to visit her dying father in Moscow. She had been waiting on her passport from the Russian consulate in San Francisco, which is even worse than waiting for one of ours. In an unexpected burst of efficiency, they returned her passport to her in less than the minimum [...]
Eureka, we got it!!!
Posted in Chromosome 1, Misha on May 14, 2007 | Leave a Comment »
We just got a call from the geneticists at Primary Children’s. We nailed it! My research efforts were dead on. We are now the proud parents of a 1p36 kid. You would think my feelings would be more bittersweet, and maybe that will come later, but in reality, it’s an enormous [...]
Every day, in every way, I am getting better and better
Posted in Misha on May 11, 2007 | Leave a Comment »
You Pink Panther fans will recognize that line. After quite a long time of seemingly no progress, these past couple months have been amazing. It seems that after we fixed Misha’s eyes, he really started progressing.
It seems that every couple of days, we are noticing that he has improved in some way or another. Whether [...]
Working with Misha
Posted in Misha on May 4, 2007 | Leave a Comment »
When we first started seeing that Misha was comparatively not developing as fast as our other kids, I tried to explain it away as normal different-kids-have-different-timetables stuff. Of course, my wife didn’t listen to me. It’s that mothers intuition voodoo at work.
Misha has always been a really happy child, in fact he started [...]
My son Misha
Posted in Chromosome 1, Misha on May 3, 2007 | Leave a Comment »
I have finally decided what I can use this blog for: my son Misha. Early on we began to notice Misha was not developing as fast as my other kids. It’s been long and difficult road in our attempts to identify what was ailing him.
There have been two things that we noticed that launched [...]
1-p36
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